| Nature of Enquiry | Charity Event 26th July 2014
Please help me to raise funds for the Smith-Magenis
Syndrome Foundation UK. In July I have organised to raise
money for the Smith-Magenis Syndrome Foundation.
I would be very grateful if you could support my event by
donating prizes for raffle/auction.
About Smith-Magenis Syndrome
Smith-Magenis syndrome is a genetic disability due to a
micro deletion or abnormality of chromosome 17p11. The
major features of Smith-Magenis Syndrome (SMS) include
mild to moderate intellectual disability, delayed speech
and language skills, distinctive facial features, sleep
disturbances, and behavioural problems. These behaviour
problems can be exhibited in a variety of ways, frequent
temper tantrums, impulsivity, anxiety, distractibility,
aggression and self-injurious behaviours including self-
hitting, self-biting, and skin picking.
Other signs and symptoms of Smith-Magenis syndrome
include short stature, abnormal curvature of the spine
(scoliosis), reduced sensitivity to pain and temperature,
possible toileting difficulties and a hoarse voice. Some
individuals also suffer from hearing loss and/or chronic ear
infection, and also possible vision difficulties which may
include strabismus, microcornea, refractive error, and
retinal detachment. Our youngest son Jude has Smith-
Magenis Syndrome, which is why this charity is so close to
our heart.
About Smith-Magenis Syndrome Foundation UK
The Smith-Magenis Syndrome (SMS) Foundation is a small
UK registered charity that supports families, who have
children of all ages, with Smith-Magenis Syndrome and
provides information for professionals working with these
families.
The primary focus continues to be:
?? To support families and individuals with SMS
?? To educate and increase the knowledge and
understanding of SMS
?? To support and promote research
Smith-Magenis Syndrome Foundation UK is a UK registered
charity no 1072573. Further information can be found at
www.smith-magenis.co.uk
Your donation will enhance our fund raising event and will
give your business publicity as well. Your support of this
fundraiser would be greatly appreciated. We thank you for
your kind consideration.
Yours Sincerely,
Mr. Grainger |